Another email
from a happy interviewee – and my heart danced with joy when this one arrived
today.
Leanne Snowball
suffers with a condition called lipoedema – it’s what used to be known as
elephantitis. She was embarrassed talking about it, but had decided too few
people understood the condition. She even bravely allowed us to publish
pictures of her in this week’s That’s Life! magazine. Today she wrote to thank me for the way her story appeared.
Here it is...
‘I was ten years
old when my periods started, and my body suddenly ballooned.
My mum, Angela
Pink, 31, couldn’t understand it. All through my teens she thought I was
overeating in secret. I swore I wasn’t – I was an unusually fussy eater who’d
always hated crisps and sweets, along with most other foods.
But nobody could
believe that I had really got so big from my tiny portions of plain chicken,
pasta and salads.
At school I hid
my body under my black blazer and trousers.
I hated dressing
up and drawing attention to myself and, when, at 18, I met my first serious
boyfriend, Robert Snowball, 19, I used text messaging as a way of helping him
get to know me better between dates because I was so scared my size would be a
turn off.
We fell in love
and married on Robert’s 22nd birthday, when I was 20.
At 21 I started
working as a midwife and knew I should practice what I was preaching, and lose
weight before starting my own family.
By 23 I’d lost
nearly four stone – but it had all come off my torso. My arms and legs remained
just as big as ever – and I needed size 28 trousers.
I started to
realise I could become anorexic and still have these huge embarrassing
limbs. It seemed so odd that I
searched my symptoms on the internet and found Lipoedema or “Painful Fat
Syndrome” - the modern name for what people used to call Elephantitis.
It caused the
metabolism to slow down so anything a sufferer ate was likely to be stored as
fat. But the main problem was the fatty build up on the limbs. It wasn’t just
permanent, but also extremely tender and painful. My limbs were unbearably
tender. I seemed to be a classic case.
Yet I was scared
to approach my doctor... After all my dieting, and all the years Mum had
thought I was stuffing myself, I would have been mortified if he dismissed my
online diagnosis and said “No – You’re just fat!”
It wasn’t until
I’d had my sons Alexander, when I was 26, and Benjamin, when I was 28, that the
pain got so bad that I finally went to a doctor I knew and trusted from work.
I could have
cried when he agreed I had lipoedema. But the bad news was the excess fat had
blocked my lymph nodes and now I also had a lot of painful excess fluid that
couldn’t drain away – a condition called lymphoedema.
My doctor
referred me to a nurse specialist for treatments to reduce the fluid build up.
But nothing could
or ever will shift the stubborn fat on my limbs. Even if I resorted to
liposuction, which some women do, it could make the condition worse!
The pain is now
so bad I need a morphine like painkiller – but it’s so zonking I daren’t take
it when I’m looking after my boys, so can only get relief at weekends when
Robert can take over.
Even worse,
Lymphoedema makes cuts and bruises so slow to heal that some sufferers have had
their infected limbs amputated.
That is a
terrifying thought, but there are experts working on a cure!
In the meantime,
I hope my story will warn other women not to ignore unusually stubborn fat. If
your weight seems wrong for the amount you eat, then it probably is!’